Long term follow up of children with rheumatological conditions who participated in a two week rehabilitation programme

Results 32 children were included in the review with the diagnoses of Benign Joint Hypermobility Syndrome (BJHS), juvenile idiopathic arthritis (JIA), Juvenile Dermatomyositis (JDM) and Chronic Pain Syndrome (CPS). The mean follow up was 6 months of which 80% had maintained or increased their muscle strength since discharge. There was 100% school attendance and return to sport and 25% were doing as much sport as their peers. Pain and fatigue had also improved in 95% and 15% were discharged from care and further 75% were planned to be reviewed between 6 – 12 months.